Archive for October, 2009

Home made Christmas cards

Saturday, October 31st, 2009

I’m planning to make my own Christmas cards this year (hopefully).  I managed to make some last year-a stencilled dove on indian hand made paper.  I drew the dove, then carefully cut it out of card to make a stencil then used white acrylic paint and a stubby brush and dabbed through the stencil on to squares of blue and gold indian hand made paper.  I then stuck the squares with the dove on it onto pre-made blank cream cards.

This year I’m going to attempt a nativity scene.  I’m nervous about this because I usually draw and paint animals and landscapes rather than people due to a lack of confidence with figures.  Anyway the plan is to do the nativity scene in oil paint on canvas then try and take a decent photo, download it onto the computer and then print it out however many times onto card.  That’s the theory anyway.  The reason I’m going to try oil on canvas is partly because that’s my favourite medium and partly because I find it to be much more forgiving than acrylic or watercolour but everyone’s different.  If I don’t manage it for this year (i.e I’m too slow) I’ll try to get it done for next year and go to plan B for this year.  Now I just need to think of a plan B….

Coffee and anxiety

Saturday, October 31st, 2009

I’ve noticed that whenever I have more than one coffee I become more anxious.  Not surprising really.  I don’t drink coffee regularly so don’t have much of a tolerance and it’s choc full of caffiene which is not supposed to be great for anxiety.  The thing I find strange is that I do regularly drink irn-bru which also has caffeine in it, but no  extra anxiety whereas with coffee it’s really noticeable.  The irn-bru doesn’t affect me too much (I know it’s maybe not too healthy)  but coffee makes me very chatty, agitated and uncomfortable, what’s in it apart from caffiene?  What have I learned?  No more coffee!

My slide into mental illness-part 5

Friday, October 30th, 2009

I don’t remember much in the weeks after getting the forcible injection.  It’s all a bit of a blur.  My first memories are about a month later and people coming to visit me.  I was still psychotic but it was slowly receding.  I was on a heavy dose of olanzipine (an anti-psychotic medication).  I was being hostile to some of my friends and family and just withdrawn with others.  The ward I was in was a mixed   gender ward and had beds for 12 “inmates”.  This in reality meant usually 10 males and 2 females (including myself) but at one point there were 3 of us.  In my opinion it is wrong to mix females and males when they are as ill and vulnerable as this.  Most medical wards (although not all) are separated so why not psychiatric wards?  I reckon it’s to do with money rather than the welfare of the patients.  There were supposed to be separate toilets, showers and baths for each gender but this was not the case, the male shower room and toilet was broken and the female bath room was broken so there was only one of each so they were shared, which meant pee all over the floor in the bath room.  The enamel on the bath had all worn away.  The shower was in a state of disrepair and was more of a trickle than a shower with a disgusting floor.  It could take a whole day of waiting to get a wash in either room.

The ward consisted of a day area, with an area for eating which was also used for art therapy which was for one hour a week.  There was an area for watching TV and two very small “quiet rooms” (one was the designated smoking room) with glass walls so the nurses could see from their station what was going on.  There were two corridors to each side where the bedrooms and and bathroom down one corridor and the shower room down the other.  There was a very small garden but one was only allowed out once you were deemed safe and with a nurse maybe two.  I found this very difficult as I wasn’t allowed outside for a long time and became very claustrophbic being contained in such a small space with so many people and no fresh air.

There were some very unwell people in the ward (obviously) some were quite improved and lucid but others were in various stages of psychosis.  One in particular was very manic and was pronouncing his delusions and these fed my delusions.  He was very helpful in that when I said I had a bit of a sore tooth he insisted that I say to the nurses and get taken to the dentist.  I did this and it turned out I had two impacted wisdom teeth which may have been what had been causing my “sinusitis” headaches before I was admitted.  I had to go under general anaesthetic to have these out.

The food was atrocious so I ate very little, especially because I now had delicate gums.  But because I was on anti-psychotics I gained weight anyway.  I usually missed breakfast because I was unable to get up in time because I was so sedated.  I would have a small amount of soup and a yoghurt for lunch, something vile which I would poke at for tea and at pill time I would have some toast to try and soak up the medication a bit.

Pill time was an unpleasant affair.  Two nurses would wheel out the medicine cabinet.  Sometimes it was one of the few nice nurses, those times I would be ok.  But there were several who thought it was ok to dispense the tablets into their hands instead of the little cups provided.  I was very paranoid about germs and refused to take the tablets if they had done this and this made them very grumpy indeed.  Even now I don’t think anyone would want to take tablets out of a relative strangers grubby hands, but maybe that’s just me?

Once a week everyone would see the consultant psychiatrist.  I don’t really remember much of our short conversations but inevitibly I would leave crying.  I don’t know why.  She was unpleasant and patronizing and I found out later that I wasn’t very communicative, oh well.

The new consultant psychiatrist from my home area came to visit me at some point and she was very polite and understanding.  I still didn’t really know what was going on at that point but it turns out she wanted me moved to a ward closer to home and where she was the consultant.  Unfortunately the ward psychiatrist managed to stall this for a good six weeks.

In that time I was changed to a different drug rispiradone I think because the olanzipine wasn’t doing the trick.  Once I was on this drug, every morning I would wake with a very sharp spasm in my calf muscles, it felt like they were going to snap it was very painful.  It did however work for the psychosis.  I became very depressed and anxious.  My hands were raw from constanly washing them.

Then a new patient was admitted.  He was probably about 50ish.  He had long grey hair and a grey beard.  He cornered me and said that he was going to kill me.  I was terrified.  He then said it again but this time in front of others.  One of the other patients told the nurses.  They did nothing about it.  They managed to wheedle out of me that it had happened and said I should tell them if it happened again, I was terrified to say anything.  I did tell my sister who came to visit , she was my named person (the person who is supposed to stand up for your wishes while you are not well).  I eventually persuaded her to say something to the nurses and they said I was perfectly safe and that they would watch him 24 hours a day.  That lasted about 12 hours and he cornered me again saying he was going to crucify me.  I told the nurses and said I wanted a transfer to a different ward immediately because I didn’t feel safe.  I was moved 3 terrifying days and nights later.  He urinated in my room, luckily when I wasn’t there.  So much for 24 hour observation and so much for locking our rooms when we weren’t there.  I couldn’t go for meals because he would threaten me.  It’s pretty hard to avoid someone in such a small ward.

Finally I was moved to the ward near my home and I was so relieved.

Trying to quit smoking

Friday, October 30th, 2009

I’m currently trying to quit smoking.  Unfortunately I’m not doing very well.  I managed 3 weeks without then the next week I kept having the odd few and yesterday I smoked all day.  I’m on the nicotine gum again today but unfortunately smoked two cigarettes.   It’s so hard and frustrating.

I’ve been smoking on and off for 14 years and although I have managed to quit before, I’ve always gone back to it again (stupid I know).

I find the nicotine gum helps with the physical cravings but doesn’t deal with the psychological craving, so if I get bored or stressed I’m in trouble.

I’m going to try and keep on trying to quit :)

Early morning insomnia

Friday, October 30th, 2009

I wake up between 4am and 6am most mornings and need to get up.  Sometimes it’s 2am but I usually get back to sleep if it’s that early.  I’ve done some reading on insomnia and was surprised at the different forms of it, I had always thought of insomnia as being only difficulty getting to sleep at night.  But it seems to include getting to sleep at night, waking during the night and early wakening and not getting back to sleep.  I often feel guilty for getting up so early (sounds a bit odd now that I think about it) and feel that I shouldn’t be awake at odd times in the morning.  But I think that’s slightly distorted thinking.  A lot of people have to get up very early in the morning for various reasons .

a ramble

Thursday, October 29th, 2009

I’m feeling slightly peculiar this morning and slightly irritable.  Not helped by the fact that there are loud drilling noises coming from next door.  I feel hot and cold at the same time, a sign that I overdid it yesterday.  I had a night of very strange and vivid dreams (which happens most nights- but yet I’m always slightly surprised) and it takes me a while in the mornings to regain my equilibrium.

One of the really unpleasant symptoms of schizoaffective disorder (and schizophrenia) is called alogia or poverty of speech “is the lessening of speech fluency and productivity, thought to reflect slowing or blocked thoughts, and often manifested as laconic [using few words], empty replies to questions.” (C.George Boeree 2003). This I find really very difficult, it makes trying to make and maintain friendships very hard.  It’s not that I don’t want to talk it’s more that I just can’t.  My mind goes blank.  Sometimes I desperately want to have a chat but I can’t think of anything not even polite chit chat.  It can be very lonely and depressing.  Sometimes I can’t even think of anything to think about if that makes sense.

Acupuncture and fibromyalgia- my experience

Wednesday, October 28th, 2009

Yesterday I went for my 6th acupuncture session.  I decided a couple of months ago that I would give it a go and see if it would help my fibromyalgia pain.  I have a session once a fortnight (ideally it would be once a week but I can only afford fortnightly) and I am pleased to say I have seen significant improvement.  I’m still in a lot of pain but it has definately decreased, I’m not getting nearly as many headaches and best of all my energy levels have improved so much.  My anxiety levels have also reduced.

I have noticed that towards the end of the two weeks, usually about two days before my next session I start to backslide and my symptoms worsen.

When I had my first two treatments I felt good, then the next day I got a terrible headache, this stopped by the 3rd time.

I did a bit of research on the internet about acupuncture and fibromyalgia and found that most sites were saying that the studies that have been done are about 50:50 on whether it is effective or not.  Maybe different things help different people?

I have previously had acupuncture through the NHS but didn’t find it terribly helpful.  Who knows why one helped and the other didn’t.

My slide into mental illness part 4

Wednesday, October 28th, 2009

I broke out of the unalarmed fire door and somehow managed to scale the rather large fence surrounding the hospital.  I thought I was being chased by the evil family and kept hiding in dark doorways.  I thought I could see camera’s watching me so kept running through the streets.  I ran as well as I could and stopped at the top of a hill.  I had no idea where I was and noticed a man in a van following me.  He kept stopping and as I moved on he would come closer.  To this day I have no idea if that was a hallucination or not.  I saw a phonebox and dialled 999 and probably incoherently told the police that someone was following me and I was scared.  They asked me where I was, I had no idea, I looked about and told them what I could see around me, what landmarks there were.  They arrived quickly and bustled me into their car.  I told them about the hidden place where there were fake doctors and where they were doing horrible things.  We arrived back at the hospital and I was frogmarched into the lobby.  I was then taken into an interview room with who I now know to be the consultant psychiatist on duty.  I told them my theories and I do remember him looking quite alarmed.  He said I was to go into the secure ward.  Once I arrived in the locked ward I believed that I was here to be killed.  If I went down the corridor to the bedroom I would die.  So I stayed awake the whole night in the small smoking room, pronouncing to some other poor patient that we would all be free soon.  I started to believe I was Jesus and that I had great power and talked incessantly.  As morning came my mood darkened again and I believed I was being shot at, so of course I began hurling myself around to dodge the bullets.  At this point I must have been “taken” to my room as the next thing I remember is being pinned to my bed by bending my arm backwards.  I couldn’t stop crying and thought I was doing some great deed by being in pain that I was somehow protecting someone else.  I’m not really sure what exactly I mean by that but that’s how i remember it.  I also remember looking round and seeing 3 other staff grinning to each other.  Then I was forcibly injected and everything went black…

My slide into mental illness part three

Tuesday, October 27th, 2009

I had been swinging up and down for a long time and had terrible anxiety.  My antidepressants had been changed a few times but were not doing the trick.  I then stopped sleeping properly, I thought people on TV were talking directly to me and that lyrics in songs were special messages to me.  For a while I had religious delusions.  Then due to other health problems I had to stay at my parents home for a while.  I started having very paranoid delusions and hearing voices and thinking that I’d been attacked.  I thought there were vampires chasing me and that someone was stopping and rewinding time.  The 2004 Athens Olympics were on at the time and I was convinced that I was taking part in some of the events.  I thought the ceiling was leaking blood.  I became very difficult to deal with and wasn’t very easy to be about.  I kept trying to “go on the run” from the lurking horrors.

I eventually after 3 months I was starting to be more lucid and went home.  I got in touch with my Psychiatric nurse and got an appointment with one of the locum psychiatrists.  I told her all that had happened, her response was “I don’t know what that was” and sent me away with a low dose of mood stabilisers with my anti-depressants.  I dropped into a devastating low.

I moved house to where I live now in the summer of 2005 to be nearer family and to somewhere that had regular buses and a shop, a bit of a novelty after living in remote parts of the country. I became high again but it turned into psychosis after a few months.  I had terrible headaches that made me cry in pain.  I believed I was in a fake house and that I was being drugged when I was asleep.  I believed the phones were tapped and that someone was out to get me.  I saw my GP who said it was a sinus headache, it got worse and couldn’t sleep for the pain, I had an unpleasant run in with an out of hours GP who was very mean.  At home again I phoned the police (Ihave no idea why) who put me through to the ambulance service and they sent me an ambulance.  I had locked myself in the house and lost the keys so they had to climb in the window to pick me up.  Once in A&E I babbled about my fears and was sent to a psychiatric unit.  By this time I hadn’t slept for 4 days and still wouldn’t sleep I was too scared.

I became paranoid about the place I was in.  I believed that it was run in secret by an evil family who were drugging people into submission, restricting the air and that the doctors weren’t doctors at all.  I believed I had special powers.

I broke out the unalarmed fire door and ran away…

Fibromyalgia-things that may help

Tuesday, October 27th, 2009

There are a few things that I have found very helpful over the last few years to help ease or at least distract myself from fibromyalgia pain.

  1. hot water bottle
  2. ice pack
  3. epsom salts in the bath-eases my muscles and helps me sleep
  4. tiger balm
  5. essential oils
  6. a good laugh!

These might not help everybody but they have certainly helped me.